An Organization of Leadership

When The Cystic Fibrosis Foundation of Barbados first came on the scene, there was a lot of dedication on the part of those who founded the organization. To the onlookers, it seemed like The Cffb grew fast. It was often commented upon that our growth was faster than organizations who were many times our senior due to our age.

Immediately upon its formation, The Cffb was determined to be a leading organization. Parameters for operating was developed and implemented with a team that sought excellence. The leadership was determined to assist those afflicted with Cystic Fibrosis with the best service possible; since there are no doctors on the island who are qualified in cardiac pulmonology.

In Barbados, hardly anyone knew what the illness comprised of, CF was unfamiliar to Barbadians. The Cffb had an uphill task. So how did we get to where we are?

1. We are willing to serve. 
2. We think ahead, planning towards future situations. 
3. We take initiative, preparing to be uncomfortable to ensure the beneficiaries obtain assistance.
4. We function with a character of humility. 
5. We're constantly developing skills with people.
6. We ensure that those who depend on us are covered. 

Despite being a not for profit entity, it is necessary that we are committed to a code of excellence. We believe it necessary to give of our best in all that we do, especially since people's lives and livelihood depend on it. 

We are the Cystic Fibrosis Foundation of Barbados, and we are Aware to Care. 

When a plan comes together

For weeks there has been planning, organizing, meetings, and a myriad of activities that surrounded the planning of the gala dinner for the Cffb's - Wine, Diamonds and Jazz event which was held recently. From the glowing reports that we have received, we would conclude that everyone had a great time.

As you can imagine, it took the effort of many teams to pull this all together. Our volunteers, supporters, well wishers, parents of children with CF, and donors to mention a few made significant contributions to make this event a reality.

However we want to make mention of those who contributed to make the silent auction actually happen. They know who they are and will be featured on our website shortly. We're also excited about the partnerships we're developing with entities that though they required plenty paperwork for authenticity, we were able to deliver and be accepted for some aid; hopefully on a continual basis.

If you only can imagine it, there were many elements that had to work in synergy to make this event happen. Something went right as patrons want the even to be held next year and for years to come.

The event was developed to accomplish a particular purpose; to help those affected by the devastating Cystic Fibrosis [CF]. Out of this event, we will be able to help three of the families by way of small contributions in their quests for treatment of their loved ones. This is a first for the organization of The Cystic Fibrosis Foundation of Barbados [The Cffb] and we are feeling a short lived sense of accomplishment as there is still quite some ways to go.

During the awareness building for the gala dinner, we met another local who is an adult and has advised us that they too have the condition CF. We are now providing follow up so that they too can obtain the needed care. There is an urgency as the illness seems to have taken quite a toll on them and their body is showing its effects. So the race for awareness / fundraising is not over; the baton has just been passed for the next leg to continue.

We are thankful for our God-given vision to establish this foundation properly. so that when asked for the requisite compliance information by the various agencies it was forthcoming.

Those who attended the event were key. If they had not done so, it would not have been able to make the difference to those with CF. We thank you. To our sponsors and donors, we extend heartfelt thanks and will continue to do so on our website, which we are rethinking currently to make it more interactive for those who visit; so they can receive current information.

We are now preparing for the Aware to Care Walk scheduled for July 4, 2015. This was our initial major event for the year now in its second year. Why do we keep going? CF is not going to stop until there's a cure. It seems to mutate and we must keep adapting to be victorious.

Standards of a charity - The magnificent seven

For many, when they are affected by something / someone that moves them emotionally; in many cases there begins the need to start a charity. What then happens is that another organization begins, sometimes duplicating the work of another one, facing scarcity and lack at various levels.

If this seems like an odd thing to read, examine it closely and you'll see that based on observation it isn't.

There's a streak that runs through organizations of all types. The people involved often need to feel a sense of belonging. They want to give back and contribute. They want to ease the burdens of others. However, regardless of the organization, there's a need to have standards to ensure that everyone operates in alignment and on a similar platform with clarity, if not the result can be chaos.

What are some of these standards? Let's highlight a few of the more serious ones below:

• Transparency - decisions made and actions taken should always be without prejudice
• Accountability - helps in keeping everyone hones and corruption at bay
• Fairness - assists in ensuring that everyone is treated equally
• Documentation - is necessary for posterity and lends to historical value of decisions taken, meetings held, discussions which took place. Documentation can be done physically / virtually utilizing any of the available storage media which are now quite affordable
• Rules - established the parameters within which everyone operates
• Compliance - provides the controls to ensure the rules are adhered to
• Non-discrimination - goes a step further than fairness ensuring that any and all prejudices are eliminated at the root cause

Though there may be others, these "magnificent seven" capture the essence of all the issues. To be truly helpful, the charity must have a loving, yet discerning nature about it. At the Cffb we are committed to these standards and have them documented so that regardless of the individuals in leadership or among the members / volunteers; the organizations will remain true to its mission.

Why do we see the sense of setting standards within a charity? It's because, We're Aware to Care!

Are they aware of us?

When you're involved in something, it's easy to think that just because you know what your cause that everyone else should know as well. You work hard, putting structure in place all the while trying to ensure that you do the right thing.

In meetings you speak about the vision, mission, objectives, succession, who does what and when. Then before long, you realize that for all that you've done; for all that hard work and the projects that you have put on the plate for future seasons - No one outside the immediate group knows who you are, and to be blunt - neither do they really care.

We were no different. When we mentioned that we're established to help those with Cystic Fibrosis (CF); you should have seen the blank stares. After a pause for an indeterminate amount of time, they would then go....what did you just say?

Just imagine saying to someone that there are people here among us with a rare illness that is quite expensive to treat. They have no point of reference so in their head they go - here's another one. There's going to be always a group of people asking for money for their particular cause. It's that simple. Their cases will be unique in some instances. What we're finding is that as humans, we're diverse with a variety of special health cases. The stories seem to surpass the opportunities for assistance, and in these hard times; budgets are limited.

Guess what? Despite the aforementioned, we can stop. We can't fail the youngsters and their families of those afflicted by Cystic Fibrosis. We're working hard to make the awareness grow, and the truth is, we're under resourced and under capitalized; yet we can't and won't stop.

How are we raising awareness? We will go to where you are!

Take for instance some of the places we have been and are targeting:

• Universities, colleges, public affairs and their respective events
• We will host events - walks and galas that will get us noticed 
• We will use the internet with its opportunities for having websites, using a variety of social media[ including blogs and newsletter
• We will use traditional media in a planned way - newspapers, radio, television, magazines, and the newsletters of other organizations. 

When we think / focus of the opportunities that are available, we can't dwell on the problems.

We are well structures and becoming better organized, so that we can become the bench mark for charitable organizations. Is it easy? No!

One thing is certain, "We're the Cystic Fibrosis Foundation of Barbados", and though you may not know of us yet. you will cause we're building awareness one person at a time. You'll find that as an organization, We're "Aware to Care"!

Why we commit to Excellence

When fund-raising, one is only taken seriously if they appear to be professional. This means the organization must have the following:

• The organisation has its policies, procedures and standards well documented
• They practice what is documented
• There is clarity and accountability
• Everyone functions well within their assigned area of responsibility
• There are budgets, reports, and cost controls 
• Programs are clear and decisions are minuted 
• All audits and reviews are current and documented 
• Volunteers and members receive various types of training

Are we doing all these things? Though it's not easy, we can say that we're making a very valiant effort of ensuring we put every meaningful measure in place. We want to ensure that before questions are asked that the answers have been addressed.

We are a Barbados based registry charity. 

Last year we begun the first of an annual series of Aware to Care walks. We were blessed to have the 100 Voice Choir Project, which is another annual event support us significantly with our fund-raising efforts. 

This year we are focusing on the Gala Fund-raising Dinner - Wine, Diamonds, & Jazz. Where tickets are available here online at Tixpro and at the Wine World locations locally. We need to raise significant funds for our families who are affected by CF. [See our flier here] 

Cystic Fibrosis costs families approximately USD$12000.00 per month / per individual who has CF in medication, plus international doctor visits; as we have no one trained in the area on island, plus airfare, accommodations, and living expenses while there. 

Additionally, the expenses of running the foundation necessitates us having to acquire - an operating base, computers and office equipment [they don't have to be new, just functional] 

It is important that we take this cause seriously as lives depend on it. Those who have CF are literally facing life / death situations every day when they cannot access the required care. Please Help Us! 

To reach us, you can use our website which has full contact details. Thank you in advance for your support. 

We are the Cystic Fibrosis Foundation of Barbados, and we are committed to excellence! 

So much to do, so few resources

Have you ever watched the various shows on television where contestants are asked what would they do to make a difference and they say, become a volunteer for one effort or another? How come they are rarely seen by the actual organizations? If you've ever been a part of any activity requiring charity effort, you'll notice that the bulk of the work is done by just a few people. 

When we asked why this is so, here are a few responses which came out:

• We didn't hear anything further from the organization after we signed up
• We didn't know who to make contact with to know what's next
• No one asked for help, so we didn't know what was required
• and the list goes on.

When we developed The Cystic Fibrosis Foundation of Barbados [The Cffb], we decided that we wanted to be different, offering training, developing sub-groups to handle various aspects based on the skill set of the individuals who volunteered. We made it easy for volunteers to access information in their own time by having shared files, email, online groups and even online meetings. 

We are thankful to find out that though others may complain that their volunteers don't read, we have found some volunteers who seem to understand what volunteering is about. They are willing to be:

• methodical
• accountable
• responsible 
• they deliver 

They recognize that through their volunteering effort they can expose themselves to the following:

• networking relationships
• job opportunities 
• work experience
• enhancement of skills - administration, fund-raising, logistics, planning (events and activities) 
• social skills - inclusive of public speaking and protocol

Where do we go from here?

We are setting standards to the be premier charity when it comes to being organized and well coordinated. This is by no means an easy task but it is necessary. We want to be the benchmark of quality for charitable organizations not only in Barbados but the rest of the Caribbean region. Our processes will be well documented, so that succession planning is easy and the continuity of the organization to our cause is safeguarded. 

In short, we are The Cystic Fibrosis Foundation of Barbados. We help those families affected by CF to cope with the challenges of finding information, sources medical care, and financing. We are committed to functioning with excellence. 

Why are we fundraising again?

One thing about charities, we always seem to be asking for money? It would appear that people and organizations are always getting correspondence and media activities about some event or activity taking place geared towards raising funds.

What makes the appeal of one more interesting than that of another?

Sometimes it even seems that there's duplication of effort within the arena of fundraising. With more than one organization serving the same cause. Can it be streamlined? This is an age old question for which they are as many answers as they are as many people wishing to embark on the development of a charity.

While we can't speak with authority on the others, we can tell you about ours. We are the Cystic Fibrosis Foundation of Barbados [TheCffb] and we're geared to help those families afflicted by Cystic Fibrosis [CF].

Information about CF can be found here and there.

This month, we're on the eve of our major fundraising gala event entitled "Wine, Diamonds & Jazz". Where proceeds go towards helping those families affected by CF to have funds to obtain the medical care they need which is not available on island.

Even in these trying economic times, we have to keep appeals going as this illness is relentless and the expenses are staggering.

Everyone in Barbados has to travel to a metropolitan country to get medical attention. Airfare and accommodations add to the already high costs of the medical care. Won't you help us or direct us to someone who can?

We are raising funds to help these families, as our local wages / salaries and insurances can't cope. Thanks in advance for your support.